PANDAS / PANS Journal2.1 - App Store

PANDAS / PANS JOURNAL is the first iOS app to allow parents to record symptoms and notes on a daily basis to diagnose and treat children with PANDAS / PANS.

What are PANDAS and PANS?

Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections (PANDAS) and Pediatric Acute-onset Neuropsychiatric Syndrome (PANS) are characterized by a debilitating onset of intense anxiety and OCD in children.

In addition, children with PANDAS / PANS may experience tics and symptoms of depression, irritability, anxiety, and have difficulty with schoolwork. The cause of PANS is unknown in most cases but is thought to be triggered by infections, metabolic disturbances, and other inflammatory autoimmune reactions.

Why PANDAS / PANS Journal?

1. JOURNAL to record symptoms - For every child afflicted by this horrible condition, an entire family's life is turned upside down. Parents wake up every morning, wondering if it was all a dream, only to realize they are living the nightmare. PANDAS / PANS Journal is a place to record the daily behaviors, changes and medications of children with this condition to better-understand how to treat them.

2. COMMUNICATION tool between you and a doctor - We found that doctor's appointments can be overwhelming. It was a struggle to remember all that had happened since the last appointment and we didn't want to miss communicating any important details. PANDAS / PANS Journal provides an organized way to share data with the care providers of your choice.

3. GRAPHICAL ANALYSIS and rating scales - As you enter data our system will help you see the subtle interplay between symptoms and treatment of your child, empowering you with the insight of what is working and what is not.

4. CONTRIBUTION of data leading to medical breakthroughs - Researchers need data to make breakthroughs. You can choose to share your data to help with this process or keep it confidential.

Parents who have witnessed a child transform from happy and healthy to an inconsolable shell of their former self know the agony induced by this debilitating condition.

A child affected by PANDAS/PANS exhibits life-changing symptoms such as OCD, severe restrictive eating, oppositional defiance, anxiety, tics, personality changes, decline in math and handwriting abilities, sensory sensitivities, and the list goes on.

When PANDAS / PANS affected our lives personally, we found ourselves overwhelmed with feelings of isolation, helplessness, fear and grief over losing the person that our child once was. When we could muster up the energy after a long day of outbursts, oppositional defiance, and repetitive OCD questions, we tried to jot down notes for our next doctors' appointments. These dark days blended together, making it difficult to attend medical appointments with a clear and organized mind, prepared to ask the right questions and accurately recount the previous weeks and months.

As pioneers in the App Store health arena, we made it our mission to work on this PANDAS / PANS app with the goal to improve the management and healing process for the caregivers of children with this condition.

To support this app and the cause, we offer an optional auto-renewing subscription that removes all ads.
- Under the sponsor tab you can either select 1 month (at $9.99 / month) or 12 month (at $6.92/ month ) auto-renewing subscriptions.
- Subscriptions automatically renew unless auto-renew is turned off at least 24-hours before the end of the current period
- Payment will be charged to iTunes Account at confirmation of purchase
- Account will be charged for renewal within 24-hours prior to the end of the current period, and identify the cost of the renewal
- Subscriptions may be managed by the user and auto-renewal may be turned off by going to the user's Account Settings after purchase
- Any unused portion of a free trial period, if offered, will be forfeited when the user purchases a subscription to that publication, where applicable

Version History -fixed issue with custom IV treatment notes not showing in history 2.1 10/14/2017 Thanks for your subscriptions to support this app!
We have made the following improvements in this update:
-added new IV treatment section (PEX, IVIG, Rhituximab)
-fixed issue with daily notes
-fixed issue with birthday entry
-fixed reporting issues 2.0 10/12/2017 Thanks for supporting the app and for submitting feedback!
This update includes several important fixes and some minor enhancements as follows:

(1) Moved “Report Sharing” button from Settings/Data to top right of Insights screen
(2) Increased font size of freeform notes entry widget to 18.0
(3) Fixed a glitch that occurred when deleting a person.
(4) Fixed a glitch that was causing freeform notes to not sync between devices.
(5) Changed “Never” in meds to “As Needed”
(6) Fixed several issues with buttons not working and overlaid pickers in the Meds screen.
(7) Fixed issue with birthday not setting properly in Profile screen.
(9) Fixed an issue with changing meds for one child affecting another.
(10) Fixed an issue with data display for previous year 1.1 01/02/2017 1.0 12/23/2016